Scientists are studying the causes of and risk factors for Tourette Syndrome TS in an effort to understand it better, and to find better ways to manage TS and to reduce the chances of a person having TS. The causes of TS and other tic disorders are not well understood. Although the risk factors for and causes of TS are unknown, current research shows that genes play an important role: 1,2. Some research has shown that TS is a genetically complex disorder that likely occurs as a result of the effects of multiple genes interacting with other factors in the environment.
Scientists are studying other possible causes and environmental risk factors that might contribute to TS. Researchers working with the Tourette Association of America began developing and testing a promising treatment option 1 , 2 that does not use medication, called Comprehensive Behavioral Intervention for Tics, or CBIT pronounced see-bit.
The first large study of CBIT in children was published in CBIT is a type of behavioral therapy that teaches a person to become aware of their behavior and helps them change how they behave. During CBIT, the therapist helps individuals with tics learn to. Leon Dure, a pediatric neurologist from the University of Alabama at Birmingham. Now he is basically tic-free for the first time since third grade.
If we had CBIT 4 years ago, it would have made the past 4 years so much better. When this behavioral treatment was first developed, health professionals were concerned that it could cause more misunderstandings about tics. During the past decade, there has been increasing evidence that CBIT can be effective for many people with Tourette.
Experts now suggest using it as the first approach to treatment because its effectiveness is similar to medications but with fewer side effects. Researchers continue to learn more about how and for whom this treatment is most effective. For an adult, this might involve carrying something that you can spit into. Tics are involuntary movements and it is counter-productive to tell a child off when they tic and tell them to stop as they cannot help themselves. If they feel unable to tic in front of friends and family they may suppress their tics, which is tiring, and they will still tic in private.
For many children these body movements and noises can be confusing and it is productive to encourage them to talk about them with you and let their tics out when they need to. There are books available that you can read with your child, which help explain the condition in easy to use language. Many children say that once they know what is happening to their body it is easier to handle, and they are happy to be able to explain to other people.
It is not a legal requirement to tell your employer of your condition. This decision is to be made at your own discretion, and will depend on the severity of your TS and how it impacts your life, and more poignantly, your ability to work in a specific role.
You can let your employer know about your condition at the following stages. Read more about TS in work. Even without a diagnosis, it is important to communicate with the school about any behaviour or tics that you notice.
Find out if the school have noticed anything as well. You can provide the school with TA teacher leaflets which provide information about TS, possible barriers to learning and classroom strategies. Find out if the school have any experience of pupils with TS. It is important for parents and schools to be as informed and prepared as possible in how the school will support the pupil, should symptoms develop and the child get a diagnosis. You will find more information on our support in school page.
The local authority will usually make a statement if they decide that all the special help your child needs cannot be provided from within the school's resources. These resources could include money, staff time and special equipment. Tourette Syndrome TS is an inherited neurological condition.
It affects one school child in every hundred A diagnosis of Tourette Syndrome TS can lead to greater understanding of the condition, access to healthcare, Support for people with Tourette Syndrome can range from healthcare services, statutory benefits and Monday 25 October: Share your experiences and help improve neuro services.
Reg Charity no: Designed by Storm This website may use cookies to provide an improved experience. You can refuse these cookies by changing your browser settings. To remove this message, click here to accept cookies. It's our birthday! Tourettes Action turns 40 this year! Help us celebrate our milestone birthday by donating here. Frequently asked questions We often get asked specific questions about Tourette Syndrome. There is no connection between the two, but sometimes misdiagnosis of the symptoms can occur.
For most, Tourette is a lifelong condition. Thankfully, most have a significant decrease in their symptoms over time. Tourette is often suspected based on the history and physical examination. Sometimes brain scans, EEGs, or neurotransmitter levels are used to clarify the diagnosis. If there is any possibility of recent strep or Lyme disease, tests for them should be run, because specific treatment may be necessary both now and in the future.
However, when the Tourette is very troublesome the medicines can be wonderful. Usually, Tourette syndrome is difficult to prevent. Lyme disease is generally preventable. Measures to prevent Lyme disease or strep may be helpful to reduce the risk of Tourette syndrome. In the last few years, researchers have discovered some clues about the genetics of Tourette syndrome.
In , researchers from Yale University identified a genetic mutation present in some patients with Tourette syndrome. Clearly, more research is needed to determine the genetics of this condition and the potential for gene therapy. Our goal is to improve children's health by inspiring parents to become knowledgable partners who can work with their children's physicians in new and rich ways.
Introduction to tourette syndrome: The great English poet, author, and conversationalist, Dr.
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